MoST Program

A few weeks ago when I seen my oncologist Dr George he asked me if I was happy for him to send a referral to the Garvan Institute as they had some studies happening that could be useful for me in the future.. In his words ‘your different Kristy and we need to see what the next line of treatments could be if the current ones stop working’

Of course I laughed my arse off cause as we all know I am different as hell….. Its not totally uncommon for someone to be re diagnosed with a different type of cancer. Just for me as I responded so well to the initial treatment and was NED (no evidence of disease) for 8 months to have another hormone related cancer pop up in my remaining breast had them puzzled. Didn’t help that I was the fittest and healthiest looking cancer patient you ever did see….

Anyways Friday 2 weeks ago I got a call from the Garvan Institute to tell me I qualified for their studies, what a nice way to say how bloody weird I am … lol …. also in the conversation I had with a lovely lady I also qualify for a few other tests as my initial diagnosis was before I turned 40. And they are trying to see why this is happening.

I didn’t hesitate to say yep ill do it cause my theory even if it doesn’t help my treatment it may help another lady down the track with the research they get from my blood and biopsy samples.

I was initially reserved as I had been told this would cost me thousands of $$$$ but the Garvan Institute had received some government funding for these studies. Which considering the cost of the drugs I’m on, one I’ve been told is $200,000 per year and I’m on that for the rest of my life… Having these places do the studies to see why cancer presents in some people I believe is money well spent.

Better to prevent than fix later on is my motto…

Anyways I’m out for the time been …..


2 Comments Add yours

  1. David says:

    Nice you were able to get into the study. Most of everybody don’t see cancer as being unique to the individual. When my mom had it the first time in 1971, she was only 40. At that time, she was considered to be “unusual” because they had rarely seen women that young develop breast cancer. Then, when it recurred in her remaining breast some 20 years or so later, it was a matter of why. Both times, mom was fortunate she had the “good” cancer, which is the tumor growing slowly. Also, the tumors showed no significant spread, so her docs were able to provide a surgical curative. Usually, in a recurrence, the tumor is more rapid growing, the “bad” kind of cancer. My mom’s oncologist, his question was why. In looking at her labs, the blood chemistries were all in the normal range. There were no tip-off’s. Even her hormones were in the normal range. It may be one of those “freak” things where everything came together to cause her cancer. And, yes, that happens as well.

    Of course, treatments are constantly changing and evolving for the better. The treatment you’re receiving is light years more advanced than the treatment my mom received. What is being today is tailor-fitting the treatment to meet an individual patient’s requirements that would lead to a more successful outcome. At least participating in a study, it might bring down your overall prescription cost, at least it should.

    Continued best wishes on your treatment. 🙂 🙂


  2. Lesley Holcombe says:

    Wishing you all the best ,so thrilled you are with Garvan -they are an amazing supportive institution . I have been with them for past 3 1/2 years of my 6 years of illness with use of trial drugs & quality of life has improved miraculously . You go girl -love your positive attitude & honesty — it makes a huge difference in recovery & helps cope with the not so good days 💕


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