A few weeks ago when I seen my oncologist Dr George he asked me if I was happy for him to send a referral to the Garvan Institute as they had some studies happening that could be useful for me in the future.. In his words ‘your different Kristy and we need to see what the next line of treatments could be if the current ones stop working’
Of course I laughed my arse off cause as we all know I am different as hell….. Its not totally uncommon for someone to be re diagnosed with a different type of cancer. Just for me as I responded so well to the initial treatment and was NED (no evidence of disease) for 8 months to have another hormone related cancer pop up in my remaining breast had them puzzled. Didn’t help that I was the fittest and healthiest looking cancer patient you ever did see….
Anyways Friday 2 weeks ago I got a call from the Garvan Institute to tell me I qualified for their studies, what a nice way to say how bloody weird I am … lol …. also in the conversation I had with a lovely lady I also qualify for a few other tests as my initial diagnosis was before I turned 40. And they are trying to see why this is happening.
I didn’t hesitate to say yep ill do it cause my theory even if it doesn’t help my treatment it may help another lady down the track with the research they get from my blood and biopsy samples.
I was initially reserved as I had been told this would cost me thousands of $$$$ but the Garvan Institute had received some government funding for these studies. Which considering the cost of the drugs I’m on, one I’ve been told is $200,000 per year and I’m on that for the rest of my life… Having these places do the studies to see why cancer presents in some people I believe is money well spent.
Better to prevent than fix later on is my motto…
Anyways I’m out for the time been …..